By Henrik Jeppesen.
Since June 2019, my life has changed a lot due to daily jaw pain and headaches affecting me a lot. On this page, you can find a lot of information about my big problem. I have been to around 40 specialists and had over 100 treatments. I have not found a solution to become pain-free, but it’s my biggest dream for the rest of my life to find one. I have made this page to potentially increase the possibility of the dream becoming true.
How it started
The pain started after I had a lipoma removed from my neck and after I experienced a lot of stress. One of the two might have caused the pain, but the cause is unknown. It began with me feeling something close to the ear, then turned into a very high level of jaw pain, sometimes reaching an absolutely horrible 10/10 pain level. Since the summer of 2019, the overall daily level of pain has been reduced, but it’s still affecting my life a lot.
What is the problem?
The problem is daily jaw pain and headaches. It goes up and down in level. I can’t open my mouth much without feeling the main issue which is in the left side of the jaw. It’s probably TMJ/TMD issues. I have tried many things but nothing seems to improve my condition, but maybe a combination of many things have helped me reduce the overall daily pain level.
It’s also frustrating that there are different opinions about what is wrong with me, but I don’t really have a diagnose. A dentist in Denmark said I have osteoarthritis in my jaw joint, but nobody agreed. Scannings didn’t show any signs of it and dentists disagreed clearly with the opinion. I am now trying to focus on self-help, also because I owe the bank a lot of money after many treatments without success. I don’t feel like wasting more money on things that don’t work, but some have offered me free treatments and tried to help and if anyone reading this is interested in helping me in any way, please contact me. The details are below.
I have used a splint since December 2019, that was specially made for me. Several dentists have confirmed it’s great. It might have helped me, but I still have daily jaw pain and headaches. All scannings have not given any answers to what is wrong with me. It is quite a mystery.
I think I have been scanned around 8 times in relation to this big problem.
New September, 2021: MRI: “With the mouth closed, there is a slight lateral asymmetry in the discs, there is no clear dislocation. With the mouth open, the discs are in the normal position.
No thickening of the synovium / increase in joint fluid is observed. The bone marrow signal in the subchondral part is normal, there is no bone marrow swelling. Periarticular soft tissues are common.”
Below are other notes, documents and photos.
CBCT scanning of my jaws Denmark 02.10.2019 – PDF Document in Danish
20.08.2019: CT Scanning, Thisted Hospital. Translated from Danish to English
CT of jaw joint with function:
The study shows no osteoarthritis or arthritis changes accordingly
for jaw joint on both sides.
There are symmetrical conditions with closed phase scanning. At open phase is
there impression that the caput mandibulae on the right side is a little more
anteriorly to the left.
As a side effect, mucosal thickening is seen in the maxillary sinus.
/ Interpreted by Osama Hussein Al-Kafaji
/ Written by Osama Hussein Al-Kafaji
/ Approved by Osama Hussein Al-Kafaji
Hospital: Aalborg University Hospital Thist
Department: Thy Billeddiagn.Afs.Thisted
02.06.2020, Aalborg Hospital. Orthopantomographic X-ray, Translated from Danish to English
Patient referred from own doctor due to atypical facial pain.
The patient has previously been examined at the ENT Department, several dental
doctors, MRI scan without known causal factor. Has also been investigated by
neurologist, neurologically completely inconspicuous, no classic signs of
The patient indicates that the pain has been going on for some years and that
he has been through several investigative processes in various
specialties without specific cause of the symptoms. Indicates even pain
primarily from the left side, pointing to the masticatory muscles, the musculus
seats, musculus temporalis with associated headache. Have experienced jaw
articulation. Indicates that he has slept with a reflex-releasing bite splint
over the last 6 months and to some extent has also used this in
the hours. Has previously received physiotherapy and also indicates one
mental component, in that the symptoms have been less associated
with Covid-19, where the thoughts have been elsewhere. Have previously taken
strong analgesic to relieve pain, no longer feel that
he chews hard food items and chews primarily on the right side. Feel that
the teeth do not fit together as well as they usually do after constant use
of reflective release bite splint.
No known drug. Tolerates penicillin, iodine and plasters.
According to FMK.
Unobtrusive exterior. No signs of cutaneous redness or swelling. Gaber 45
mm. without deviation and unobstructed protrusion as well as laterotrusion bilat-
ralt. Hereby well-functioning translation in the joint, no jaw joint buckling,
no crepitation, no tenderness on palpation of the jaw joint, but pronounced
tenderness on palpation of the muscular masseter, primarily in the left side.
Likewise tenderness on palpation of the temporalis muscle anterior and
posterior bilaterally and around the sternocleidomastoid. Patients
seen constantly sitting with the arm raised, holding on to the jaw, taking this
The patient is seen naturally inflamed with a closed row of teeth from 8+ to +8
as well as 8- to -8. A very well-functioning and well-maintained set of teeth without signs
on cariogenic processes, no evidence of marginal bone periodontopathy.
Tongues and mucous membranes are also seen inconspicuously. With articulation paper
found severe, unambiguous habitual occlusion bilaterally, no evidence of
supra contacts in the clinical trial. Rail not brought,
hereby not assessed.
Orthopantomographic X-ray examination shows unresponsive conditions
around jaw joint and jaw cavity and no signs of degenerative
changes, no evidence of marginal or apical bone periodontopathy,
nor signs of other ossuary destruction. Caput is seen bilaterally
correctly placed in the fossa.
Conclusion and plan
32-year-old man referred by his own doctor for examination of jaw
joint problems, primarily in the left side. By the subjective indications
is considered to be a primary muscular component of the musculus
masseter and musculus temporalis as well as musculus sternocleidomastoideus
and a habit of constantly elevating the shoulder and laying on of hands on the left
jaw. The patient himself indicates a relieving effect of this, but it is seen
also a constant activation of the shoulder and neck muscles with
a possible functional causal factor in the form of hyperactivity in this
At the clinical and radiological examination there is not
found signs of osteoarthritis or other problem around
joint. However, a muscular component is seen in the form of musculus masseter,
primarily in the left side, muscular temporalis anterior and posterior med
hyperactivity and irritation on palpation. The patient is seen with a
natural set of teeth and free translation and good occlusion without deviations.
It is not considered to be osteoarthritis or malocclusion.
The patient is seen with inconspicuous conditions. It is recommended that the patient
due to hyperactivity in the muscles continues with nocturnal use of
reflex-releasing bite splint, avoid using it during the day for reasons
for congestion and irritation around the joint as well as feeling of
altered occlusion. The patient may also have a soothing effect
by cranio-sacral massage on the masticatory muscles. It has been made clear
to the patient that there are no signs of disease around joints, teeth
and jaws, and it is important that the habit of holding on to the joint and
constant lifting of the shoulder should cease due to irritation in the area
that. It is also recommended that the patient transition to complete
normal diet and makes sure to distribute food around the entire mouth too
to avoid overactivating a specific area. It is recommended
tient to try to remove focus a little around the symptoms around
the musculature, as it is considered to have a strengthening effect. There is
at present no surgical treatment is offered to the patient.
The condition can be treated conservatively with a reflex-releasing bite splint
to reduce the hyperactivity around the masticatory muscles.
/ DZ012 Contact for examination of teeth /
Mette Hørberg, educated dentist / mw
Hospital: Aalborg University Hospital
Opinions coming later.
Per Stylvig, Frederiksberg:
Karin Fejerskov, Risskov Tandklinik
Rikke Freitag, Tandlægerne i Ans
Hanne Lollike, Furesø Tandlægerne
Karina Schrøder, Tandklinikken Stengaard, Nyborg
Monica Steengaard, Tandklinikken Stengaard, Nyborg
Jette Arberg, Aalborg Tandpleje
Peter Kloster, Tandlægerne i Jernbanegade, Thisted
Jørn Sandal, Klinik Limfjorden
Flemming Korsgaard, Klinik Limfjorden
Anne Mette Herforth, BeneFiT Herning
Nanna Lunding, BeneFiT Herning
Lasse Jensen, Johnson Instituttet, Odense
Jette Bach, Osteopat klinikken i Charlottenlund
Tommy Hedelund, Klinik for Manuel Behandling, Aarhus
Randy Marcos Batista dos Santos, Osteopadia, Recife, Brasilien
Jess Hansen, Hobro
Hans Erik Foldberg, Roslev
Jonna Christiansen, Thy Kropsterapi, Thy: Kranio-Sakral Terapi behandling.
And some others
Besides dentists, doctors and other specialists, I have tried a lot more including:
Apple cider vinegar
Brazilian muscle relaxer
Brazilian pain killer medicine
CBD creme (different kinds)
Ice on the jaws
Lactic acid bacteria, Puori Synbiotics SB3
Scarf with warmth
The ketogenic diet and intermittent fasting
I did this diet combination for around three months but stopped as I found it difficult to keep unless I stay at the same place with access to buy specific products. This is my favourite diet and I have started on the diet again. It didn’t fix my problem, but during the time I did this ketogenic diet, I think it lowered the amount of daily pain compared to diets I have done high in carbohydrates. It might be very hard to start on this diet, but I think I can get used to it if I live in the same place for longer periods of time and make an effort to buy the right products. Based on research I think this is the best diet for me together with intermittent fasting, but I don’t think it can be a solution to become pain-free. I think it can lower my pain levels, though, and that is why I am doing it.
I have lived vegetarian on-off for the past few years. I feel no health benefits to just be a vegetarian if you still consume a lot of sugar products and products high in carbohydrates. So I don’t think just being vegetarian is a solution to my problem or something that can lower the pain.
-Walking minimum 10,000 steps per day.
-Taking supplements Fish oil, Magnesium, Valerian, Vitamin D, and Vitamin B1.
-Continue to use the splint (night guard) at night
If you think you can help me in any way, I would be thankful if you can contact me at firstname.lastname@example.org or phone/WhatsApp at +372 53542468.